Children's Heart Association
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Children's Heart Association

When a child is diagnosed with a heart problem it is a difficult time for the whole family, we would like to help

Category Archives: Parent Support

Make A Wish Foundation

makeawish

Make-A-Wish Foundation UK has a very simple objective – to grant magical wishes to children and young people fighting life-threatening illnesses. The charity was founded in the UK in 1986 and since then has granted over 5,500 wishes. With over 20,000 children in the UK living with life-threatening conditions at any one time, our work is never ending. Our aim is to ensure that every one of these children is able to experience the magic and joy of a Make-A-Wish wish. We receive no government funding or lottery grants, relying on the generous donations of the public and that’s why, for our charity, every donation really counts.

www.make-a-wish.org.uk

July 8, 2010 Matthew

Children’s Heart Federation

logo_roll

The Children’s Heart Federation (CHF) brings together groups across Britain and Ireland so that they can share problems, ideas, approaches and educational materials designed to help heart children.

www.chfed.org.uk

January 2, 2006 Matthew

Scottish Association for Children with Heart Disorders

sachd

The SACHD is one of several groups which fall under the umbrella of the Children’s Heart Federation. All of the money they raise in Scotland is spent on research projects, equipment for hospitals and homes and family support grants. They publish information leaflets, books magazines and newsletters as well as providing weekend breaks for young adult and teenage groups.

www.youngheart.info

January 2, 2000 Matthew

Cardiomyopathy Association

cma

The Cardiomyopathy Association is a charity that provides information and support to families affected by the heart muscle disease cardiomyopathy. This site has information on the main types of cardiomyopathy.

www.cardiomyopathy.org

January 2, 2000 Matthew

Contact a family

contactafamily

Contact a Family (CaF) are the only UK-wide charity providing advice, information and support to the parents of all disabled children.

www.cafamily.org.uk

January 2, 2000 Matthew

Downs Heart group

dhg

The Down’s Heart Group is a UK charity which offers support and information relating to heart conditions associated with Down’s Syndrome. They also can provide specialised help to parents and professionals.

www.dhg.org.uk

January 2, 2000 Matthew

Somerville Heart Foundation (GUCH)

guch

The Somerville Heart Foundation started with the name the Grown Up Congenital Heart Patients Association and was renamed in 2022. It is UK charity, founded in 1993 to provide information and support for young people and adults who were born with a heart condition, and their families.

sfhearts.org.uk

 

January 2, 2000 Matthew

Heartline

heartline

We provide information on congenital heart defects, in the form of fact sheets about children in hospital, their rights, medicines, pain, preparation for surgery, different disorders, education, exercise, feeding problems, etc.

www.heartline.org.uk

January 2, 2000 Matthew

Little Hearts Matter

lhm

Little Hearts Matter is the national voice for families where a single ventricle heart condition, such as Hypoplastic Left Heart Syndrome, Tricuspid Atresia, Double Inlet Ventricle or Pulmonary Atresia has been diagnosed. The charity works with medical and social care teams to offer a multi-disciplinary approach to the support and information needed by this group of people and their carers.

www.lhm.org.uk

January 2, 2000 Matthew

Family Fund

fft

The Family Fund helps families of disabled and seriously ill children under the age of 16. We give grants and information related to the care of the child. The range of grants includes holidays, leisure, laundry equipment, driving lessons and lots more. The range of information includes information sheets on subjects such as benefits, holidays and transport, and books such as Taking Care, After 16 – what’s new? and more.

www.familyfund.org.uk

January 2, 2000 Matthew

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Events

See https://heartchild.info/events

News

  • In Memory of Michelle Johnston
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  • JustTextGiving Withdrawal
  • Christmas fun
  • US heart child raises money for us on holiday

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  • About
    • Welcome
    • Our branches
    • Patrons
      • Denise Kitchiner
      • Raman Patel
    • Events and Tickets
    • Facebook Groups
    • Website Privacy Policies
    • Safeguarding Policy
  • Features
    • Blog
    • Jake’s story
    • Robyn’s story
    • James’ story
    • Luke’s story
    • Aidan’s story
    • Ivy’s story
    • Photo gallery
  • Information
    • UK Children’s Cardiac Centres
    • Manchester Children’s Hospital
    • Travel Insurance
    • UK resources
    • Other resources
    • Teeth and the heart
    • Medical terms
    • The Heart Team
    • Intensive care
  • Making a donation
  • Join us

Get In Touch



Email
information@heartchild.info

Telephone
01706 221988

Write to
Children's Heart Association
23 Hesketh Drive
Heswall
Wirral
CH60 5SP

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We are a charity based in the North West of England in the UK and provide support to families with children with congenital or acquired heart disorders at all stages of their condition, helping them deal with the problems and challenges it brings.
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Children's Heart Association "Tommy and Tina" Logo © 2005
Registered Charity 267893