Children's Heart Association
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Children's Heart Association

When a child is diagnosed with a heart problem it is a difficult time for the whole family, we would like to help

All posts by Matthew

JustTextGiving Withdrawal

The donate by text service provided by JustGiving and Vodafone is being withdrawn from 31st March 2019.  After this date our JustTextGiving text codes will no longer work.

Thank you for your support.

January 17, 2019 Matthew

UK Cardiac Centre Contacts

We’ve added a page listing contact information for the UK cardiac centres, also linked from the Information menu above.

August 11, 2015 Matthew

Information Day – Sep ’15

Conference 2015 poster flyer

August 8, 2015 Matthew

Not Just for Children

Not just for children

August 8, 2015 Matthew

CHA’s Got Talent – Sep ’15

x 2015 CHA 's Got Talent flyer

August 8, 2015 Matthew

Ball of Hearts – Nov ’15

x2015 Ball of Hearts flyer frontx 2015 Ball of Hearts flyer back

August 8, 2015 Matthew

Information Day 2015

Confirmed speakers to include antenatal diagnosis and care, holiday worries, how to talk to your children about the heart, vaccines for heart kids, how to use an automatic defibrillator, and advances in surgery.

There are special sessions for dads, new parents, older children, and grown up heart kids, with stalls from other heart charities.

This is a free event, with lunch included and free parking but, as places are limited, we do ask that you live in the North West or receive care from Alder Hey or Manchester cardiac units.

For more details and booking check out the event page heartchild.info/infoday.

June 20, 2015 Matthew

Research into Parents’ Experiences of Administering Painful and/or Invasive Procedures

A team from the Social Policy Research Unit at the University of York, funded by WellChild, are conducting research into the administration of painful and/or invasive procedures by parents of children with long-term health conditions.  This research is running from May 2014 to October 2015 and they are looking for support from parents who may be able to provide their own experiences of this.

They would like to better understand your experiences of undertaking the procedure, being trained to do the procedure, managing your child’s reactions to the procedures, how you think undertaking these procedures affects you, your child and your family, and any support needs arising from this.

If you feel that you could help with the research, further information is available at http://www.york.ac.uk/inst/spru/research/pdf/PEAPIPinf.pdf.

Alternatively, contact Gemma Spiers on 01904 321984, or at gemma.spiers@york.ac.uk.

March 8, 2015 Matthew

Happy Summer Dayz

Our Association was selected as part of the One Stop and Mondelez (formerly Cadburys) ‘Happy Summer Dayz” campaign which ran from 15th July 2014 to 13th August 2014. During this time, those who won the One Stop store family days out competitions could nominate a charity to receive a donation to the same value as their prize.

In all, there were five charities that could be nominated, including the Children’s Heart Association, and we received an super total of £278.  Thank you to all those who supported us!  We look forward to using the money towards family events in the near future.

September 27, 2014 Matthew

Pulse Oximetry Screening Recommendation

The Children’s Heart Federation (chfed.org.uk) have been campaigning for all babies to receive the Pulse Oximetry test at birth to detect Congenital Heart Disease. This quick, painless and cheap test measures oxygen levels in blood and can detect over 90% of critical heart defects in newborns.

The UK National Screening Committee has now recommended the use of Pulse Oximetry Screening on newborns and has announced today there will be a national pilot.  Here are links to the announcement:

http://www.chfed.org.uk/babies-are-set-to-receive-heart-test-to-save-lives/

https://www.gov.uk/government/news/uk-national-screening-committee-recommends-new-test-for-newborn-babies-with-heart-disease

The announcement is receiving some media interest and has appeared on the Telegraph online:

http://www.telegraph.co.uk/health/healthnews/10813377/All-newborns-to-undergo-heart-tests.html

May 8, 2014 Matthew

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  • About
    • Welcome
    • Our branches
    • Patrons
      • Denise Kitchiner
      • Raman Patel
    • Events and Tickets
    • Facebook Groups
    • Website Privacy Policies
  • Features
    • Blog
    • Jake’s story
    • Robyn’s story
    • James’ story
    • Luke’s story
    • Aidan’s story
    • Ivy’s story
    • Photo gallery
  • Information
    • UK Children’s Cardiac Centres
    • Manchester Children’s Hospital
    • Travel Insurance
    • UK resources
    • Other resources
    • Teeth and the heart
    • Medical terms
    • The Heart Team
    • Intensive care
  • Making a donation
  • Join us

Get In Touch



Email
information@heartchild.info

Telephone
01706 221988

Write to
Children's Heart Association
23 Hesketh Drive
Heswall
Wirral
CH60 5SP

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We are a charity based in the North West of England in the UK and provide support to families with children with congenital or acquired heart disorders at all stages of their condition, helping them deal with the problems and challenges it brings.
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