Little Hearts Matter is the national voice for families where a single ventricle heart condition, such as Hypoplastic Left Heart Syndrome, Tricuspid Atresia, Double Inlet Ventricle or Pulmonary Atresia has been diagnosed. The charity works with medical and social care teams to offer a multi-disciplinary approach to the support and information needed by this group of people and their carers.
The Family Fund helps families of disabled and seriously ill children under the age of 16. We give grants and information related to the care of the child. The range of grants includes holidays, leisure, laundry equipment, driving lessons and lots more. The range of information includes information sheets on subjects such as benefits, holidays and transport, and books such as Taking Care, After 16 – what’s new? and more.
CHUF is a voluntary charity who’s aim is to help support the Children’s Heart Unit at the Freeman Hospital In Newcastle. They help by funding equipment, personnel, research, or anything else that may be needed to help keep the unit at the forefront of children’s coronary care.
Barth syndrome is a rare and serious genetic disorder. One of the ways it can manifest is as Cardiomyopathy. The Barth Syndrome Trust was created to better serve the needs of affected families both in the UK and the rest of Europe.
Supporting families affected by DiGeorge syndrome, VCFS and 22q11.2 deletion. Max Appeal is run by parents for parents. Our events are designed to make life enjoyable and our information aims to inform and help.
The Sudden Arrhythmia Death Syndromes (SADS) Foundation was established on December 12, 1991 by G. Michael Vincent, M.D. and several dedicated co-founders. Our Mission is to save the lives of children and young adults who are genetically predisposed or otherwise susceptible to sudden death due to cardiac arrhythmias and to provide education and support to families and the medical community who are dealing with these disorders.
At HEART UK we’re passionate about preventing premature deaths caused by high cholesterol.
We’re committed to raising awareness about the risks of high cholesterol, lobbying for better detection of those at risk & supporting health professional training. It’s also why we work with a variety of partners to promote healthier lifestyle options.