Providing support and at home care to families with babies and children under the age of 5 diagnosed with Congenital Heart Defects and / or feeding difficulties. Supported by Alder Hey Children’s NHS Foundation Trust – Cardiac and Gastroenterology Departments.
Make-A-Wish Foundation UK has a very simple objective – to grant magical wishes to children and young people fighting life-threatening illnesses. The charity was founded in the UK in 1986 and since then has granted over 5,500 wishes. With over 20,000 children in the UK living with life-threatening conditions at any one time, our work is never ending. Our aim is to ensure that every one of these children is able to experience the magic and joy of a Make-A-Wish wish. We receive no government funding or lottery grants, relying on the generous donations of the public and that’s why, for our charity, every donation really counts.
The Children’s Heart Federation (CHF) brings together groups across Britain and Ireland so that they can share problems, ideas, approaches and educational materials designed to help heart children.
The SACHD is one of several groups which fall under the umbrella of the Children’s Heart Federation. All of the money they raise in Scotland is spent on research projects, equipment for hospitals and homes and family support grants. They publish information leaflets, books magazines and newsletters as well as providing weekend breaks for young adult and teenage groups.
The aim of the British Heart Foundation is to play a leading role in the fight against heart disease so that it is no longer a major cause of disability and premature death.
The Cardiomyopathy Association is a charity that provides information and support to families affected by the heart muscle disease cardiomyopathy. This site has information on the main types of cardiomyopathy.
Contact a Family (CaF) are the only UK-wide charity providing advice, information and support to the parents of all disabled children.
The Down’s Heart Group is a UK charity which offers support and information relating to heart conditions associated with Down’s Syndrome. They also can provide specialised help to parents and professionals.
The Somerville Heart Foundation started with the name the Grown Up Congenital Heart Patients Association and was renamed in 2022. It is UK charity, founded in 1993 to provide information and support for young people and adults who were born with a heart condition, and their families.
We provide information on congenital heart defects, in the form of fact sheets about children in hospital, their rights, medicines, pain, preparation for surgery, different disorders, education, exercise, feeding problems, etc.