Not Just for Children
CHA’s Got Talent – Sep ’15
Ball of Hearts – Nov ’15
Information Day 2015
Confirmed speakers to include antenatal diagnosis and care, holiday worries, how to talk to your children about the heart, vaccines for heart kids, how to use an automatic defibrillator, and advances in surgery.
There are special sessions for dads, new parents, older children, and grown up heart kids, with stalls from other heart charities.
This is a free event, with lunch included and free parking but, as places are limited, we do ask that you live in the North West or receive care from Alder Hey or Manchester cardiac units.
For more details and booking check out the event page heartchild.info/infoday.
Research into Parents’ Experiences of Administering Painful and/or Invasive Procedures
A team from the Social Policy Research Unit at the University of York, funded by WellChild, are conducting research into the administration of painful and/or invasive procedures by parents of children with long-term health conditions. This research is running from May 2014 to October 2015 and they are looking for support from parents who may be able to provide their own experiences of this.
They would like to better understand your experiences of undertaking the procedure, being trained to do the procedure, managing your child’s reactions to the procedures, how you think undertaking these procedures affects you, your child and your family, and any support needs arising from this.
If you feel that you could help with the research, further information is available at http://www.york.ac.uk/inst/spru/research/pdf/PEAPIPinf.pdf.
Alternatively, contact Gemma Spiers on 01904 321984, or at gemma.spiers@york.ac.uk.
Sponsored Bounce
We are really looking forward to the end of the month when we are having a sponsored bounce. A local paper has been to see one of our older children who has already raised over £300 and told her story of this trip helping her to feel included rather than left out.
And here is a letter from another child, Chloe, that accompanies her sponsor form.
It’s not too late to join us on 28th March – whether you’re sponsored or not.