Cardiomyopathy Association
The Cardiomyopathy Association is a charity that provides information and support to families affected by the heart muscle disease cardiomyopathy. This site has information on the main types of cardiomyopathy.
Contact a family
Contact a Family (CaF) are the only UK-wide charity providing advice, information and support to the parents of all disabled children.
Downs Heart group
The Down’s Heart Group is a UK charity which offers support and information relating to heart conditions associated with Down’s Syndrome. They also can provide specialised help to parents and professionals.
Heartline
We provide information on congenital heart defects, in the form of fact sheets about children in hospital, their rights, medicines, pain, preparation for surgery, different disorders, education, exercise, feeding problems, etc.
The Ashley Jolly Sad Trust
The Ashley Jolly Sad Trust (SADS UK) is a voluntary organisation that exists to raise awareness about little known heart conditions in young people and provides information and support to families who have experienced the sudden unexpected death of a loved one due to such a condition. The Trust fundraises to purchase and donate heart monitoring equipment to detect potentially fatal heart conditions in order that once a condition is identified the patient can be referred to a cardiologist for treatment, to minimise the risk of sudden premature death.