Children’s Heart Federation
The Children’s Heart Federation (CHF) brings together groups across Britain and Ireland so that they can share problems, ideas, approaches and educational materials designed to help heart children.
Scottish Association for Children with Heart Disorders
The SACHD is one of several groups which fall under the umbrella of the Children’s Heart Federation. All of the money they raise in Scotland is spent on research projects, equipment for hospitals and homes and family support grants. They publish information leaflets, books magazines and newsletters as well as providing weekend breaks for young adult and teenage groups.
British Heart Foundation
The aim of the British Heart Foundation is to play a leading role in the fight against heart disease so that it is no longer a major cause of disability and premature death.
Cardiomyopathy Association
The Cardiomyopathy Association is a charity that provides information and support to families affected by the heart muscle disease cardiomyopathy. This site has information on the main types of cardiomyopathy.
Contact a family
Contact a Family (CaF) are the only UK-wide charity providing advice, information and support to the parents of all disabled children.
Downs Heart group
The Down’s Heart Group is a UK charity which offers support and information relating to heart conditions associated with Down’s Syndrome. They also can provide specialised help to parents and professionals.