Children's Heart Association
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Children's Heart Association

When a child is diagnosed with a heart problem it is a difficult time for the whole family, we would like to help

Blog

Little Hearts Matter

lhm

Little Hearts Matter is the national voice for families where a single ventricle heart condition, such as Hypoplastic Left Heart Syndrome, Tricuspid Atresia, Double Inlet Ventricle or Pulmonary Atresia has been diagnosed. The charity works with medical and social care teams to offer a multi-disciplinary approach to the support and information needed by this group of people and their carers.

www.lhm.org.uk

January 2, 2000 Matthew

Family Fund

fft

The Family Fund helps families of disabled and seriously ill children under the age of 16. We give grants and information related to the care of the child. The range of grants includes holidays, leisure, laundry equipment, driving lessons and lots more. The range of information includes information sheets on subjects such as benefits, holidays and transport, and books such as Taking Care, After 16 – what’s new? and more.

www.familyfund.org.uk

January 2, 2000 Matthew

The Ashley Jolly Sad Trust

sadsuk

The Ashley Jolly Sad Trust (SADS UK) is a voluntary organisation that exists to raise awareness about little known heart conditions in young people and provides information and support to families who have experienced the sudden unexpected death of a loved one due to such a condition. The Trust fundraises to purchase and donate heart monitoring equipment to detect potentially fatal heart conditions in order that once a condition is identified the patient can be referred to a cardiologist for treatment, to minimise the risk of sudden premature death.

www.sadsuk.org

January 2, 2000 Matthew

Children’s Heart Unit Fund

chuf

CHUF is a voluntary charity who’s aim is to help support the Children’s Heart Unit at the Freeman Hospital In Newcastle. They help by funding equipment, personnel, research, or anything else that may be needed to help keep the unit at the forefront of children’s coronary care.

www.chuf.org.uk

January 2, 2000 Matthew

Barth Syndrome Trust

barth

Barth syndrome is a rare and serious genetic disorder. One of the ways it can manifest is as Cardiomyopathy. The Barth Syndrome Trust was created to better serve the needs of affected families both in the UK and the rest of Europe.

www.barthsyndrome.org.uk

January 2, 2000 Matthew

Transplant Kids

tpkids

This site has been created and is maintained by a transplant family. The information is meant to be in words that a child may understand and not guaranteed to be entirely correct in all cases. Every transplant centre has it’s own protocols and every child is unique so there will always be variations in care and treatment.

www.transplantkids.co.uk

January 2, 2000 Matthew

Max Appeal

maxappeal

Supporting families affected by DiGeorge syndrome, VCFS and 22q11.2 deletion. Max Appeal is run by parents for parents. Our events are designed to make life enjoyable and our information aims to inform and help.

www.maxappeal.org.uk

January 2, 2000 Matthew

Heart and Coeur

heartcoeur

This is a French language website which is intended to encourage and extend the relationship between patient and doctor. The site also has an extensive directory of other organisations and provides a translation facility.

www.heartandcoeur.com

January 2, 2000 Matthew

American Heart Association

americanheart

Contains a great deal of information on the heart, diseases and conditions, lifestyle and more. Their mission is to build healthier lives, free of cardiovascular diseases and stroke. That single purpose drives all we do. The need for our work is beyond question.

www.heart.org

January 2, 2000 Matthew

Heart Foundation – South Africa

southafrica

The Heart Foundation is a community-based organisation established to reduce the incidence of heart disease and stroke in the population of South Africa by providing education and supporting research.

www.heartfoundation.co.za

January 2, 2000 Matthew

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Events

See https://heartchild.info/events

News

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Authorised Users

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  • About
    • Welcome
    • Our branches
    • Patrons
      • Denise Kitchiner
      • Raman Patel
    • Events and Tickets
    • Facebook Groups
    • Website Privacy Policies
  • Features
    • Blog
    • Jake’s story
    • Robyn’s story
    • James’ story
    • Luke’s story
    • Aidan’s story
    • Ivy’s story
    • Photo gallery
  • Information
    • UK Children’s Cardiac Centres
    • Manchester Children’s Hospital
    • Travel Insurance
    • UK resources
    • Other resources
    • Teeth and the heart
    • Medical terms
    • The Heart Team
    • Intensive care
  • Making a donation
  • Join us

Get In Touch



Email
information@heartchild.info

Telephone
01706 221988

Write to
Children's Heart Association
23 Hesketh Drive
Heswall
Wirral
CH60 5SP

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We are a charity based in the North West of England in the UK and provide support to families with children with congenital or acquired heart disorders at all stages of their condition, helping them deal with the problems and challenges it brings.
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Children's Heart Association "Tommy and Tina" Logo © 2005
Registered Charity 267893