Liverpool Branch Meeting
Due to holidays, there’ll be no Liverpool branch meeting in July or August. The next branch meeting will be 6th September 2012. You can still email or call helpline if you need our help.
2012 Ball of Hearts Flyer and Menu
The flyer and menu for our 2012 Ball of Hearts is now available for download from our website. Tickets are £40 each. Hope to see you there.
Crocodile Hunt
It was mid morning on a Saturday when members of the Association meet in a field in the middle of the Cheshire countryside. All around the noise of excited children could be heard from the for large slides that stood in the foreground, beyond lay more structures that the shrikes of children could be heard coming from. As some parents stood watching as their children slid down the bumpy and reverse slides, some also stood there a little upset that an upper age limit of 15 and in some cases 30 had been put on some of the attractions giving many a parent a reality check that yes in fact they were getting old!.
After almost two hours of throwing themselves down slides, across moving beams and being bounces down a rather large mechanical slide, it was time for lunch where we compared notes on what we had done and what could possibly lie ahead of us in the woods.. As we followed the trail through the woods and along the steam we had to negotiate a number of obstacles that we came across at one point, some of the smaller children worried when we came to a cannon that even the biggest of them could climb through.. As we moved around the trail the obstacles got bigger and harder to get past but the children pushed on in the hope of catching a glimpse of the Crocodile who is said to lurk around these parts, then in a clearing in a patch of woodland inside a small metal hut we came across the croc, who was not to please to see us and spat water out at you if you got to close.
Once we had our glimpse of the crocodile and survived, it was back to the cars after another successful outing.
Adult Congenital Heart Disease Stakeholder Workshop
Regional workshop event invitation from the NHS… “Over the last few months an expert Advisory Group of clinicians, commissioners and patient representatives have developed ideas to bring improvements to the service. The Advisory Group have developed a proposed network model of delivering specialist ACHD care and draft national designation standards. We would now like to hear what you think of the proposed standards and model of care.”. Workshops are being held in Bristol, Manchester, York and London.
Nutritionist Resource
Aims to provide the UK with a huge nutrition support network, enabling those in need to find a nutritionist close to them and appropriate for their needs. This is a free, confidential service that will provide those seeking support with all the information they need.