Cardiomyopathy Association
The Cardiomyopathy Association is a charity that provides information and support to families affected by the heart muscle disease cardiomyopathy. This site has information on the main types of cardiomyopathy.
Contact a family
Contact a Family (CaF) are the only UK-wide charity providing advice, information and support to the parents of all disabled children.
Downs Heart group
The Down’s Heart Group is a UK charity which offers support and information relating to heart conditions associated with Down’s Syndrome. They also can provide specialised help to parents and professionals.
Somerville Heart Foundation (GUCH)
The Somerville Heart Foundation started with the name the Grown Up Congenital Heart Patients Association and was renamed in 2022. It is UK charity, founded in 1993 to provide information and support for young people and adults who were born with a heart condition, and their families.
Heartline
We provide information on congenital heart defects, in the form of fact sheets about children in hospital, their rights, medicines, pain, preparation for surgery, different disorders, education, exercise, feeding problems, etc.