Fondest memories of Michelle Johnston – a brave and beautiful lady whose smile brightened every room. Ian, Matt, Will and family are in my thoughts.
Denise Bundred (Kitchiner)
And all of us at the Children’s Heart Association.
Virgin Money Giving Withdrawal
Virgin Money Giving has made the decision to close later this year. As a result VMG will stop operating on 30 November 2021 following the London Marathon in October. You can continue to donate and support the Children’s Heart Association on our JustGiving page. Further information at https://uk.virginmoneygiving.com/giving/important-update-about-vmg/
JustTextGiving Withdrawal
The donate by text service provided by JustGiving and Vodafone is being withdrawn from 31st March 2019. After this date our JustTextGiving text codes will no longer work.
Thank you for your support.
UK Cardiac Centre Contacts
We’ve added a page listing contact information for the UK cardiac centres, also linked from the Information menu above.
Information Day 2015
Confirmed speakers to include antenatal diagnosis and care, holiday worries, how to talk to your children about the heart, vaccines for heart kids, how to use an automatic defibrillator, and advances in surgery.
There are special sessions for dads, new parents, older children, and grown up heart kids, with stalls from other heart charities.
This is a free event, with lunch included and free parking but, as places are limited, we do ask that you live in the North West or receive care from Alder Hey or Manchester cardiac units.
For more details and booking check out the event page heartchild.info/infoday.
Research into Parents’ Experiences of Administering Painful and/or Invasive Procedures
A team from the Social Policy Research Unit at the University of York, funded by WellChild, are conducting research into the administration of painful and/or invasive procedures by parents of children with long-term health conditions. This research is running from May 2014 to October 2015 and they are looking for support from parents who may be able to provide their own experiences of this.
They would like to better understand your experiences of undertaking the procedure, being trained to do the procedure, managing your child’s reactions to the procedures, how you think undertaking these procedures affects you, your child and your family, and any support needs arising from this.
If you feel that you could help with the research, further information is available at http://www.york.ac.uk/inst/spru/research/pdf/PEAPIPinf.pdf.
Alternatively, contact Gemma Spiers on 01904 321984, or at gemma.spiers@york.ac.uk.