
Barth syndrome is a rare and serious genetic disorder. One of the ways it can manifest is as Cardiomyopathy. The Barth Syndrome Trust was created to better serve the needs of affected families both in the UK and the rest of Europe.

Barth syndrome is a rare and serious genetic disorder. One of the ways it can manifest is as Cardiomyopathy. The Barth Syndrome Trust was created to better serve the needs of affected families both in the UK and the rest of Europe.
Aims to provide the UK with a huge nutrition support network, enabling those in need to find a nutritionist close to...
Useful and reliable information about giving medicines to your child - written and reviewed by children's doctors...
Providing support and at home care to families with babies and children under the age of 5 diagnosed with Congenital...
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