News
Stay updated with the latest news, events, and inspiring stories from our community. Here, we celebrate the incredible work being done to support children with heart conditions and their families. Join us as we share achievements, highlight our dedicated volunteers, and spread awareness about the vital mission of the Children’s Heart Association. Together, we can make a difference!
Ten Reservoirs Walk
The Oldham & Tameside branch of the Association would like to thank Billy Westhead and all his friends and colleagues who arranged the 10 Reservoirs Walk and donated the profits to our charity. We do not know the names of all the organisers but we are aware of the...
Saddleworth Beer Walk
Thank you again to all the regular people who took part in the Beer Walk and to anyone else who did it for the first time. We are very grateful to you all for the contribution you make to our fundraising each year and once again we are very pleased with the total...
Scottish Association for Children with Heart Disorders
The SACHD is one of several groups which fall under the umbrella of the Children's Heart Federation. All of the money they raise in Scotland is spent on research projects, equipment for hospitals and homes and family support grants. They publish information leaflets,...
British Heart Foundation
The aim of the British Heart Foundation is to play a leading role in the fight against heart disease so that it is no longer a major cause of disability and premature death. www.bhf.org.uk
Cardiomyopathy Association
The Cardiomyopathy Association is a charity that provides information and support to families affected by the heart muscle disease cardiomyopathy. This site has information on the main types of cardiomyopathy. www.cardiomyopathy.org
Contact a family
Contact a Family (CaF) are the only UK-wide charity providing advice, information and support to the parents of all disabled children. www.cafamily.org.uk
Downs Heart group
The Down's Heart Group is a UK charity which offers support and information relating to heart conditions associated with Down's Syndrome. They also can provide specialised help to parents and professionals. www.dhg.org.uk
Somerville Heart Foundation (GUCH)
The Somerville Heart Foundation started with the name the Grown Up Congenital Heart Patients Association and was renamed in 2022. It is UK charity, founded in 1993 to provide information and support for young people and adults who were born with a heart condition, and...
Heartline
We provide information on congenital heart defects, in the form of fact sheets about children in hospital, their rights, medicines, pain, preparation for surgery, different disorders, education, exercise, feeding problems, etc. www.heartline.org.uk
Little Hearts Matter
Little Hearts Matter is the national voice for families where a single ventricle heart condition, such as Hypoplastic Left Heart Syndrome, Tricuspid Atresia, Double Inlet Ventricle or Pulmonary Atresia has been diagnosed. The charity works with medical and social care...
Family Fund
The Family Fund helps families of disabled and seriously ill children under the age of 16. We give grants and information related to the care of the child. The range of grants includes holidays, leisure, laundry equipment, driving lessons and lots more. The range of...
The Ashley Jolly Sad Trust
The Ashley Jolly Sad Trust (SADS UK) is a voluntary organisation that exists to raise awareness about little known heart conditions in young people and provides information and support to families who have experienced the sudden unexpected death of a loved one due to...
Children’s Heart Unit Fund
CHUF is a voluntary charity who's aim is to help support the Children's Heart Unit at the Freeman Hospital In Newcastle. They help by funding equipment, personnel, research, or anything else that may be needed to help keep the unit at the forefront of children's...
Barth Syndrome Trust
Barth syndrome is a rare and serious genetic disorder. One of the ways it can manifest is as Cardiomyopathy. The Barth Syndrome Trust was created to better serve the needs of affected families both in the UK and the rest of Europe. www.barthsyndrome.org.uk
Transplant Kids
This site has been created and is maintained by a transplant family. The information is meant to be in words that a child may understand and not guaranteed to be entirely correct in all cases. Every transplant centre has it's own protocols and every child is unique so...
Max Appeal
Supporting families affected by DiGeorge syndrome, VCFS and 22q11.2 deletion. Max Appeal is run by parents for parents. Our events are designed to make life enjoyable and our information aims to inform and help. www.maxappeal.org.uk
Heart and Coeur
This is a French language website which is intended to encourage and extend the relationship between patient and doctor. The site also has an extensive directory of other organisations and provides a translation facility. www.heartandcoeur.com
American Heart Association
Contains a great deal of information on the heart, diseases and conditions, lifestyle and more. Their mission is to build healthier lives, free of cardiovascular diseases and stroke. That single purpose drives all we do. The need for our work is beyond question....
Heart Foundation – South Africa
The Heart Foundation is a community-based organisation established to reduce the incidence of heart disease and stroke in the population of South Africa by providing education and supporting research. www.heartfoundation.co.za
Sudden Arrhythmia Death Syndromes
The Sudden Arrhythmia Death Syndromes (SADS) Foundation was established on December 12, 1991 by G. Michael Vincent, M.D. and several dedicated co-founders. Our Mission is to save the lives of children and young adults who are genetically predisposed or otherwise...