Casino Night

We didn’t have a great turn-out on the night however everyone that came really enjoyed themselves.   It was great to see some new faces with our new members joining in and meeting others.  It was fun to see one of our volunteers, Pearl, who does not normally gamble really enter into the spirit.  She decided there would be no stopping her so she claimed the whole of the bottom of the table and set in to stay the night!  There were some risk takers with one member winning the most amount of chips on the night deciding to bet it all on number four.  On the very last spin it came up, winning them a bottle of Champagne.

Hope to see you all at our Dinner Dance in May.

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Frankie and Benny’s – Valentine’s day

On the 14th February lots of our members met up at Frankie and Benny’s in Liverpool for tea.  The afternoon did not quite go to plan as we received a call from the restaurant about 2 hours before to say the booking had to be cancelled!  It all managed to be sorted out and our 34 parents and children sat down to a nice meal and great chat together.

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Chester Zoo AGM

Our 2013 AGM is booked for the 1st June at Chester Zoo.  We’d love to see you there for our short meeting and then into the zoo to see some real monkeys!  See our events page for more information.

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Manchester Meeting

The Manchester support group will be meeting on Wednesday 9th January at the Children’s Hospital.  We’ll be there from 7pm in the Costa Coffee – then go upstairs to ward 85 and say hello to any families who might be on the ward.  We’d love to see you there.

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Liverpool Branch Meeting

Our first branch meeting for 2013 will take place this Thursday at 7.30pm in Ronald McDonald House.  Look forward to seeing you there.

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Heart of Mersey

hom

Heart of Mersey is England’s largest regional cardiovascular health charity working across Merseyside and Cheshire (and beyond) to reduce the risk of cardiovascular disease (CVD) and related conditions such as cancer, diabetes and stroke.

www.heartofmersey.org.uk

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Self-help UK

selfhelpuk

Self Help UK is a free service providing a searchable database of over 1,000 self help organisations and support groups across the UK that provide support, guidance and advice to patients, carers and their relatives.

www.self-help.org.uk

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Children’s Heart Association at Disney

disney11 For ten families their Christmas started early with a magical trip to Disneyland Paris, thanks to the Children’s Heart Association. On a cold and wet Friday morning the families met at Liverpool’s John Lennon airport to be treated like royalty thanks to Val and the staff at the airport who had arranged a private lounge and priority boarding. The short flight to Paris was met with lots of excitement by the younger members of the party with one little boy shouting “Mickey Mouse come out come out wherever you are” as soon as the plane touched down on the tarmac.

Whisked away to the Sequoia Lodge Hotel with no time for unpacking, most families spent the remainder of the day exploring the Magic Kingdom, having tears on the way back to the hotel from children worried that it was the only time they would be getting in the park.

Day 2 got off to a terrific start with families meeting for a character breakfast at Café Mickey where a non-stop parade of characters came to the table for a meet and greet, much to the excitement of all the children. The highlight for many was the Saturday evening finale in the Magic Kingdom. Hundreds of people lined the parade route to watch the magic procession of coloured floats filled with favourite Disney characters, fulfilling all children’s dreams of being waved at personally by their favourite character.

disney11-2As ever all good things have to come to an end. Day 3 saw tired and weary children and adults alike pile onto a coach back to the airport. Amidst the chatter about who saw what and searching though bags of toys to show each other what souvenirs they were taking home, one lucky boy got to go home with the memory that he saw Mickey Mouse on his birthday, a memory Tony Walsh will treasure forever.

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Lagan’s Foundation

lagan

Providing support and at home care to families with babies and children under the age of 5 diagnosed with Congenital Heart Defects and / or feeding difficulties. Supported by Alder Hey Children’s NHS Foundation Trust – Cardiac and Gastroenterology Departments.

www.lagans.org.uk

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Make A Wish Foundation

makeawish

Make-A-Wish Foundation UK has a very simple objective – to grant magical wishes to children and young people fighting life-threatening illnesses. The charity was founded in the UK in 1986 and since then has granted over 5,500 wishes. With over 20,000 children in the UK living with life-threatening conditions at any one time, our work is never ending. Our aim is to ensure that every one of these children is able to experience the magic and joy of a Make-A-Wish wish. We receive no government funding or lottery grants, relying on the generous donations of the public and that’s why, for our charity, every donation really counts.

www.make-a-wish.org.uk

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